Caring for Carcinoid Foundation

I have had carcinoid for over 20 years now (& counting), despite my doctor giving me only a very limited time. When 1st diagnosed
I was in complete denial I had amnesia about it for about 2 months, till I went back to the hospital and was reminded about the death sentence. Then I went thru all the usual emotions: disbelief, Why me, Anger, and then hopelessness.
But finally accepted that there wasn't anything I could do about it, so I decided to do all the things that I kept telling myself I couldn't take time to do. things that I always WANTED to do, not the things I HAD to do, like painting pictures (I am a Graphic Artist), and cooking etc. I Prayed deeply and enjoyed a closer walk with God who also got squeezed out of my busy life. But now I had time to think and didn't feel rushed anymore I was going to get right with God and finally start to enjoy the little time I had left while I waited.

How I Fight for a Cure

I keep up with all the latest research, and I volunteer my time to the research department at the hospital (I am the only one left still alive from the original group I was with). I try to tell me story with people I come in contact with to help get the word out there about this mysterious disease. And I keep thanking God that he has kept me alive this long, since I certainly don't deserve it. I thank God for my longevity and the doctor for my infusion pump, while I keep waiting for a breakthrough cure.

My Caring Words of Encouragement

There wasn't anyone more depressed about this news than me. I was 38 years old at the time and was SURE my whole life was over and didn't even know why since no one know why some people get this rare disease. But I am living proof Carcinoid isn't automatically a immediate death sentence. It is a wake up call about all the REALLY important things in life, like my deep relationship with God, family, friends and self. Things you tend to put on the back burner when life gets really hectic, I'm glad God has a way of slowing me down to smell the flowers along my way, then instead of just knowing they will be on top of the coffin. When I got to the point that death didn't matter anymore that when I really started to live. Thank you GOD!!



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