The Foundation Dedicated to Discovering a Cure for Neuroendocrine Cancer

Caring for Carcinoid Foundation

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05/28 CFCF Funded Research Uncovers a Potential New Treatment Strategy for Patients With Pancreatic Neuroendocrine Tumors

Dr. Xianxin Hua from the University of Pennsylvania's Abramson Cancer Center recentlypublished the results of his research linking pancreatic neuroendocrine tumors witha druggable cellular pathway. Dr. Hua's findings could lead to the testing of new drugs for treatment of neuroendocrine tumors that could benefit patients with Pancreatic NETs and possibly others as more is learned more about these mechanisms.

Dr. Hua's lab has expertise in studying the function of oncogenes and tumor suppressor genes, including menin, a protein encoded by the multiple endocrine neoplasia type 1 (MEN1) gene. Patients with MEN1 syndrome have a mutation in the MEN1 gene. Patients with MEN1 syndrome may develop pancreatic neuroendocrine and bronchial carcinoid tumors (among other tumors). We also know from other CFCF-funded researchthat sporadic pancreatic neuroendocrine tumors can have mutations in the MEN1 gene.

05/28 Save the Date: Stanford Patient Education Event

The Caring for Carcinoid Foundation and Stanford Cancer Center are pleased to announce the date for a Neuroendocrine Tumor Patient Education Conference, a free educational conference for patients and caregivers held at the Arrillaga Alumni Center, Stanford University, Palo Alto, California. Mark your calendars for Saturday,October 12th, 2013. This is during Fleet Week in the Bay Area, a special event that draws thousands to view the parade of ships, the Fleet Week Band Challenge and the humanitarian aid training demonstrations. Be sure to make your travel plans early and enjoy a special event.

05/28 CFCF Welcomes Steve Cunningham

C. Stevens (Steve) Cunningham was recently appointed to the position of Director of Development here at the Caring for Carcinoid Foundation. Steve brings more than 25 years' experience of developing philanthropic support for healthcare related nonprofits along the east coast.

Prior to joining the staff at CFCF, Steve was the Director of Development at Phelps Memorial Hospital in Sleepy Hollow, New York where he oversaw the completion of a $20 million fundraising campaign to build a new Emergency Department, he also oversaw a significant growth of the hospital special events calendar and annual fund.

In accepting his new challenge here at CFCF, Steve commented "I am pleased to bring my talents and passion for securing funds needed to support and increase research projects that will lead us to a cure if not the prevention of carcinoid tumors. It is also wonderful to return to the Boston region, which I consider home".

05/01 Upcoming Fundraiser: Second Annual Walk with Chuck

In 2012, Prospect Transportation registered 170 walkers for their first walk and raised $16,230 for the Caring for Carcinoid Foundation.

This year Prospect Transportation and Alternative Fuels Transportation will proudly present their second annual Walk With Chuck. This 10-mile walk through Bergen County, NJ will support neuroendocrine cancer research in memory of Charlie Eichholz. After pounding the pavement, join them for a backyard-style barbeque!

To join this walk, click here! 

04/28 Rally for Research

On April 8th, thousands of researchers, patient advocates and others joined together for the Rally for Research in Washington D.C. The Rally called on Americans across the country to implore our nation's policymakers to make life-saving medical research funding a national priority. The crowd heard speakers from both political parties, national patient advocates, patients, and major research advocacy organizations who described the impacts of steady erosion of funding over the last several yearsas available funds trailed the costs of research. The implementation of the budget "sequester" brought special urgency to the need to ask Congress to act now.

04/17 CFCF and the American Association for Caner Research

The American Association for Cancer Research (AACR) held its annual meeting from April 5th to 10th in Washington DC this year. The meeting gave CFCF the opportunity to bring together neuroendocrine cancer researchers, CFCF Board members and supporters from the local area. A shared sense of progress and excitement was clearly evident in the presentations and discussions at the gathering. CFCF continues to be encouraged by the outstanding science and multi-institutionalcollaboration that characterizes our supported research.

04/17 Los Angeles Patient Education Event

On Friday, April 12th, the Caring for Carcinoid Foundation joined in partnership with Cedars-Sinai Medical Center to host its 5th annual Los Angeles Patient Seminar. In attendance were 140 patients, families and caregivers. Another 85 people joined the education event via online viewing.

Attendees participated in several lectures led by expert physicians and researchers. Dr. George Fisher, associate professor and Director of Clinical Trials at the Stanford Cancer Institute began the day with a primer on NETs. Next, Dr. Edward Wolin, Co-Director of the Carcinoid and Neuroendocrine Tumor Program at Cedars-Sinai, gave an overview of current clinical trials and PRRT to the audience. CFCF's Director of Research, Lauren Erb, updated the audience on new research and results of CFCF funded projects.

03/22 FDA Warning on Avastin Recall - Potential for Eye Infection

Recently the Associated Press and ABC News have reported the Food and Drug Administration's (FDA) warning to doctors concerning the Roche drug, Avastin. Avastin is approved for usage as a cancer drug. In an online statement, however, the FDA reported two compounding pharmacies are recalling dozens of lots of the drug after reports of eye infections in patients who use the drug to treat macular degeneration. Roche has cautioned against the unapproved applicationof Avastin to the eyes.The lots being recalled are those that have been distributed to offices in Georgia, Louisiana, South Carolina and Indiana.

03/22 Upcoming AACR Event

The annual meeting of the American Association for Cancer Research (AACR) will be taking place Saturday, April 6 through Wednesday, April 10, in Washington, D.C. The AACR is the oldest and largest scientific organization in the world focused on every aspect of high-quality, innovative cancer research.Their annual meeting brings together the best and latest findings in all major areas of cancer research. The Caring for Carcinoid Foundation, including Executive Director, Ron Hollander ,and Director of Research, Lauren Erb, will be joining the AACR at its annual meeting.

02/15 Rolling for a Cause

Recently CFCF Board member, Jonathan Soroff, teamed up with Boston's local burrito joint, Anna's Taqueria, for a night of fun and fundraising. Soroff participatedin Anna's "Celebrity Roller" series. Each month, local celebrities come in to work the evening shift, rolling burritos for customers. Anna's Taqueria generously donates a portion of the proceeds to the local celeb's chosen charity. 

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