The Foundation Dedicated to Discovering a Cure for Neuroendocrine Cancer

Caring for Carcinoid Foundation

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07/18 New Article Suggests Effectiveness of Drug for Prolonged Progression-Free Survival

An article published in New England Journal of Medicine suggests the effectiveness of Somatuline(R) Depot (R) (lanreotide) in prolonged “progression-free survival” for more than 65 percent of patients who took it in a late-stage clinical trial, conducted at 48 sites in 14 countries.

06/10 Agenda Now Available for 2014 LA Patient Education Conference

The agenda is now available for CFCF's 2014 LA Patient Education Program. 

To view the agenda, click here. 

To register for the event, click here

05/06 2014 Los Angeles Patient Education Event

The Caring for Carcinoid Foundation (CFCF) is dedicated to empowering patients and equipping them with a comprehensive understanding of treatment options so they can make the best informed decisions when deciding their care. In this spirit, CFCF is pleased to bring together our extensive community of patients, loved ones, medical professionals, and supporters for the 6th Annual Los Angeles Patient Seminar on Saturday, June 21, 2014.

Please join us for this half day conference to learn more about the latest in neuroendocrine cancer diagnosis and treatment. Expert speakers will give brief lectures and then answer questions from patients and caregivers in a moderated discussion.

04/03 Orphan Drug Designation for Gallium-68
The radiopharmaceutical Gallium-68 (DOTA0-hel-Tyr3) octreotide (Ga-68 DOTATOC) has been designated as an orphan drug by the US Food and Drug Administration (FDA) for the management of neuroendocrine tumors.
04/03 NET Leader Named to Prestigious PCORI Panel
We are pleased to announce that Josh Mailman, President of the NorCal CarciNET community and chairman of the Society of Nuclear Medcine and Molecular Imaging's Patient Advisory Board has been appointed to the Patient-Centered Outcomes Research Institute's (PCORI) newest panel on Rare Diseases.
04/03 Congrats to our Cycle for Survival Teams!
We would like to offer a big congratulations to our two Cycle for Survival teams who knocked their fundraising goals out of the park! The first team, captained by Dave McCoy has raised a combined total of $65,000, cycling in both New York City and Boston; while Hap Rowan's team in New York City managed to raise over $20,000! All money will go towards supporting NET cancer research.
04/02 $300 Thousand in Prizes to Spur Creation of Neuroendocrine Cancer Cell Lines

The Rare Cancer Research Foundation (RCRF) and Caring for Carcinoid Foundation (CFCF) announced up to $300 thousand in prize awards to researchers to develop cell lines for intestinal carcinoid and pancreatic neuroendocrine cancer. 

03/12 Health Insurance in Transition: Protecting NET Patients
Health insurance is undergoing a major transition in the US. Many changes are taking place: new plans are being offered while other plans are no longer available.
03/10 First Ever NET Cancer Survey

Please help the Caring for Carcinoid Foundation and the  Carcinoid Cancer  Foundation - both members of the International  Neuroendocrine Cancer Alliance (INCA) -- increase awareness and education about NET worldwide by completing the first ever global survey of NET cancer patients! 

03/10 Exciting Collaboration with RCRF
The lack of widely available neuroendocrine cancer cell lines is a major obstacle to neuroendocrine cancer research.  Multiple cell lines that reliably recapitulate the behavior of neuroendocrine cancers are critically needed in order to move many necessary elements of carcinoid and neuroendocrine cancer research. 

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