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Not Alone – NET Community
Written by Carrie Host, carcinoid patient, survivor, author, and mother of three.
With a carcinoid or other neuroendocrine related diagnosis, it is easy to feel like you are alone on an island. It’s true that a rare disease is in some ways a lot like its own island, but you’re not alone. There are a bunch of us out here with you. (Okay, we’re a small bunch, but still.) One of the best ways to feel less isolated is to become involved with our community.
You might begin by reading several survivor stories and then perhaps write your own.
After your story is posted to our site, you might wish to copy the link and paste it into a personal email that you can send to your community or group of friends and family in an email, allowing them to see your story in a new light. Many times, when we write about our experience, it brings new definition to it.
This is also a way that you can help others who are coming to seek support on this site while also help our foundation to raise awareness.