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Advocate for Change
Carcinoid, pancreatic neuroendocrine, and related neuroendocrine cancers are classified as rare diseases, meaning they affect fewer than 200,000 people in the United States. Since they affect such a small percentage of the population, they do not get as much attention in the media or funding from the government. In the following sections, you can learn more about how to advocate for patients with neuroendocrine cancers.
Worldwide NET Cancer Awareness Day
Worldwide NET Awareness Day is celebrated on November 10 of every year. Its goal is to raise awareness of neuroendocrine cancers (NETs) and the need for timely detection and diagnosis. The Caring for Carcinoid Foundation is one of many organizations who mobilize a global audience to support patients with neuroendocrine cancers through events, social media campaigns, and other advocacy efforts.
One of the best ways to spread the word about carcinoid, pancreatic neuroendocrine, and related neuroendocrine cancers is to contact your local media outlets. Find out how you can use the media to speak on behalf of neuroendocrine cancer patients here.
Over the years, the Caring for Carcinoid Foundation has advocated on behalf of carcinoid and neuroendocrine tumor patients at the FDA and the National Cancer Institutes (NCI) in Washington, D.C. Learn how to take political action here.