Caring for Carcinoid Foundation - Los Angeles Marathon

Thanks to all of you who joined us for a weekend of education, celebration and fellowship in CFCF's first opportunity to host an Awareness Weekend on the east coast! We are so pleased to have brought together our extensive community of patients, loved ones, medical professionals, and supporters. For information about the September 2009 Awareness Weekend events please see below.

EVENT SCHEDULE

A Reading in the Healing Garden with Carrie Host

Date: September 11, 2009
Time: Reception and book signing begins at 5:00 p.m.; Carrie's words at 5:30 p.m.; Survivor recognition at 6:00 p.m.
Location: Howard Ulfelder, MD Healing Garden, Massachusetts General Hospital Cancer Center
Cost: Free. CFCF is very grateful to our sponsors: the Network for Patients and Families at the Massachusetts General Hospital Cancer Center and Harlequin for generously sponsoring this event!'
Click here for the invitation.

Ask the Experts Patient Seminar

Date: September 12, 2009
Time: Registration begins at 8 a.m.; Seminar: 8:30 a.m. - 4:30 p.m.
Location: Starr Center, 185 Cambridge St., Boston, MA
Cost: Free
Click here to view the seminar agenda
Click here for the invitation.
Note: Parking vouchers for the Fruit Street Garage and the Parkman Street Garage at MGH will be validated following the conference; click here for an interactive map of the area

Boston Benefit

Date: September 12, 2009
Time: 5:30 p.m - 7:30 p.m.
Location: House of Blues, 36 Landsdowne St, Boston MA
Cost: Free
Click here for the invitation.
Click here for directions from the Starr Center to the House of Blues.

Jimmy Fund Walk

Date: September 13, 2009
Time: Start time are from 6 a.m. - 2 p.m.
Location: Boston, MA
Registration: To join CFCF and walk to a cure please visit Team CFCF's walk page.
Click here for the invitation.

A READING IN THE HEALING GARDEN WITH CARRIE HOST

"I do have a future, and the picture of that future is made up of a multitude of tiny dots called 'right now.'" Carrie Host, Between Me and the River.

The Healing Garden provides the perfect sanctuary to find comfort and inspiration in Carrie's words as she shares her message of finding inner strength and purpose in the "right now".

Celebrate the stories and work of other survivors who have used their experience to help others. Experience how nature and the magnificent view from the Healing Garden contribute to a renewal of energy, hope and connection to others and the greater world.

PATIENT SEMINAR

Join your fellow NET patients for a day of question and answer and other educational events. Ask leading specialists from multiple fields the questions you want answered. These experts will share the latest in carcinoid/related NET understanding and treatment. This will be an active lecture/question-and-answer format. In order to guarantee your question gets answered, submit it today to askthedoctor@caringforcarcinoid.org by September 1, 2009.

The Patient Seminar will also feature patients Carrie Host and Ruth Gerdes speaking about their struggles dealing with carcinoid cancer. CFCF Board Member, Carrie Host, will speak about Between Me and the River, her recently published memoir of how she found the strength and fortitude to triumph over carcinoid cancer, and craft a new and meaningful life. Ruth Gerdes, who underwent a unique surgery to save her life, will provide advice on how to take control of your care.

Click here for the agenda.

Patient Seminar: Expert Panel

Katie Binda, MSW, LICSW: Director, HOPES Program, Massachusetts General Hospital Cancer Center
Craig Blinderman, MD: Department of Medicine, Palliative Care, Massachusetts General Hospital
Jennifer Chan, MD, MPH: Medical Oncology, Dana-Farber Cancer Institute
Michael Choi, MD: Instructor in Medicine, Harvard Medical School
Tom Clancy, MD: Department of Surgery, Brigham and Women’s Hospital
Cristina Ferrone, MD: Department of Surgery, Massachusetts General Hospital
Matthew Kulke, MD: Medical Oncology, Dana-Farber Cancer Institute
Andrew Leiter, MD, PHD: Gastroenterology, UMass Medical School
Matthew Meyerson, MD, PHD: Director, Center of Cancer Genome Discovery, Dana-Farber Cancer Institute
Ramesh Shivdasani, MD, PHD: Medical Oncology, Dana-Farber Cancer Institute
Robin Sommers, RN: Medical Oncology, Dana-Farber Cancer Institute
Keith Stuart, MD, Department of Oncology, Lahey Clinic Medical Center

Note: If you plan on attending both the Patient Seminar and Boston Benefit on Saturday, September 12th, shuttle transportation will be provided between the Starr Center and the House of Blues. A shuttle will pick up Seminar attendees at the Starr Center at both 4:45 pm and 6:00 pm and provide transportation to the House of Blues. If you wish to return to the area where the Seminar is being held after the Boston Benefit, the shuttle will depart from the House of Blues at 7:45 pm.

For handicap access to the Starr Center:

Recommended: park the above or below ground parking lots at 185 Cambridge Street; elevators will bring you directly to where the Starr Center is located on the 2nd floor.
If entering the building at street level, take the second set of glass doors to the left of the CVS entrance; a handicap entrance is to the left of the rotating doors. Take elevators to the 2nd floor.

BOSTON BENEFIT

Enjoy an evening at one of Boston’s hippest attractions, House of Blues in the unique and luxurious Foundation Room, located just steps away from historic Fenway Park. There will be a silent auction, live music and appetizers. Come join your friends, family, physicians and fellow survivors for this night of fun!

All money raised at the Boston Benefit will go directly to funding the first large-scale genomics study of carcinoid, dedicated to identifying the genes that are likely to cause carcinoid. CFCF selected this project to revolutionize the diagnosis and treatment of carcinoid and related NET patients. Ultimately, this study may lead to new therapies ‘personalized’ to each patient, specific mutations, as well as earlier detection and diagnosis, and prevention strategies. As no targeted therapies for carcinoid currently exist, this project provides an exciting hope for the future, and our goal of achieving a cure.

If you would like to donate items for the silent auction at the Boston Benefit please contact Ashley Malins

JIMMY FUND WALK

The Caring for Carcinoid Foundation invites you to come join us on Sunday, September 13th, 2009 as we participate in the annual Jimmy Fund Walk to help fight carcinoid. Hosted by the Dana-Farber Cancer Institute, the walk follows the course of the famous Boston Marathon with routes of varying distance to choose from (3 miles, 13.1 miles, or 26.2 miles). Come raise awareness and funds for a cure! All ages and abilities are welcome! Also, don’t forget to celebrate your race success with us at our post race party!

Receive $5.00 off registration fee with code: September09

Registration Info

Click here, to join team CFCF and walk for a cure. Walkers MUST be registered with Team Caring for Carcinoid Foundation for their funds to contribute to carcinoid/NET research.

For more information see: www.jimmyfund.org

JIMMY FUND WALK: START TIMES

Name

Check in and Start Time

Start Location

Hopkinton to Boston

26.2 miles

-or-

Hopkinton to Babson

14 miles

Check in from

5:30 - 7:30 a.m.

Rolling start from

6 - 7:30 a.m.

Hopkinton Center School
11 Ash Street
Hopkinton, MA 01748

Babson to Boston

13.1 miles

Check in from

8:30 - 11:00 a.m.
Rolling start from

8:30 - 11:00 a.m

Babson College
231 Forest Street
Wellesley, MA 02457

Boston College

5 miles

Check-in from

9:30 - 11:30 a.m.
Rolling start from

10 - 11:30 a.m.

Boston College: Edmonds Hall Parking Lot
140 Commonwealth Avenue
Chestnut Hill, MA 02467

Boston

3 miles

Check-in from

12:30 - 2 p.m.
Official Start at 2 p.m.

Dana-Farber Cancer Institute
44 Binney Street
Boston, MA 02115



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