The Foundation Dedicated to Discovering a Cure for Neuroendocrine Cancer

Caring for Carcinoid Foundation


Trial Title: Gastroenteropancreatic and Unknown Primary Neuroendocrine Registry: A Collection of Clinical and Epidemiologic Data Combined With Tissue and Blood From Patients With a Diagnosis of Neuroendocrine Tumors
ID Number: NCT00745381
Status: Enrolling
Sponsor: private

The purpose of this study is to establish a neuroendocrine tumor registry. A registry is a collection of information. To create this registry, the investigators would like to get information, blood and tumor samples from people with neuroendocrine tumors. By collecting this information and material, the investigators are hoping to learn more about the genetic causes of neuroendocrine tumors. All of this will help us to better understand neuroendocrine cancer, so we can find better ways to treat and diagnose this disease. DNA will be taken from the blood samples and will be used in future studies. This will be an important resource from which the investigators can study genes that may be related to a higher risk of neuroendocrine tumors.

The information collected will include medical information, family history of cancer and your answers to questions about how the cancer affects quality of life.

Principle: Diane Reidy-Lagunes
Conditions: Carcinoid Tumor, Neuroendocrine Tumor
Ages Eligible for Study:   18 Years and older
Genders Eligible for Study:   Both
Accepts Healthy Volunteers:   No
Sampling Method:   Non-Probability Sample
Study Population

patients with GEPNET or NET of unknown primary


Inclusion Criteria:

  • Diagnosis of gastroenteropancreatic neuroendocrine tumors or neuroendocrine tumors of unknown primary.
  • Willing to donate blood samples.
  • >= 18years old
  • Patients may have received prior hormonal therapy, cytotoxic therapy, irradiation, immunotherapy or surgical therapy.

Exclusion Criteria:

  • Have any condition, which in the opinion of the primary MSKCC clinician or investigators precludes their ability to provide informed consent.

Memorial Sloan-Kettering Cancer Center

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