The Foundation Dedicated to Discovering a Cure for Neuroendocrine Cancer

Caring for Carcinoid Foundation


Trial Title: An Investigation of Eight Reported Cases of Small Intestinal Carcinoid Carcinoma in Multiple Family Members
ID Number: NCT00662168
Sponsor: private

This proposed pilot study is to conduct detailed interviews into the medical, environmental, and family histories The second phase of this study project is to and to collect blood specimen to obtain DNA. The Blood specimen and DNA will be processed by the Rutgers University Cell and DNA Repository (RUCDR) and stored for a second phase of this pilot. The purpose is to rule out Familial Multiple Endocrine Neoplasia (MEN 1), and succinate dehydrogenase complex, subunit D (SDHD), gene inactivation thought to be associated with different types of carcinoid cancer.

Phase: II
Principle: Nancy Gardner,, 973-991-1302
Conditions: Carcinoid Tumor
Ages Eligible for Study:   12 Years and older
Genders Eligible for Study:   Both
Accepts Healthy Volunteers:   No
Sampling Method:   Probability Sample
Study Population

Individuals with carcinoid cancer that report to have a family member also with carcinoid tumor


Inclusion Criteria:

  1. Over the age of 18 years
  2. History of biopsy confirmed small intestinal carcinoid tumor
  3. English speaking
  4. Mentally and emotionally capable of answering questions
  5. Willing and available for study participation
  6. At least one first-degree family member with carcinoid tumor

Exclusion Criteria:

  1. If you are under the age of 18 years,
  2. If you have any mental or memory impairments
  3. If you are unable to understand the information in the informed consent document.


Get the facts on pancreatic neuroendocrine cancer

Tell Your Story

Sign-up for our e-Newsletter.


Latest Video

Check out the CFCF video library.


Ron's Blog

Read the latest blog from CFCF's Executive Director.


Lauren's Blog

Read the latest blog from CFCF's Director of Research.

Connect with CFCF online:

BBB Accredited Charity  Charity Navigator Four Star CharitySeal Exchange